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Re: RE: Achromatopsia and any drivers?

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Posted by John Knox on August 22, 2001 at 10:35:24 AM EDT:

In Reply to: Re: RE: Achromatopsia and any drivers? posted by Simon Phillips on August 22, 2001 at 05:38:45 AM EDT:

My name is John Knox, moderator of recently formed Achromatopsia-Group Yahoo Group discussion forum which you can join by going to www.achromatopsia.org -- it was just formed a little over a month ago and we already have 12 members & growing. Note, while this forum is a great place for people affected by achromatopsia to fellowship and share their life experiences, it may not necessarily be the best place to obtain validated accurate information about achromatopsia. For that, I strongly encourage all members of the forum to consider obtaining the publication "Understanding and Coping with Achromatopsia" from The Achromatopsia Network (www.achromat.org). It is a GREAT publication which contains almost everything you wanted to know about achromatopsia.

Now to answer the question (which is based on information I gathered from the publication "Understanding and Coping with Achromatopsia"), there are very few persons diagnosed with achromatopsia who have sufficient vision to become drivers. The average visual acuity of persons with achromatopsia ranges from 20/160 to 20/200; there is a wide range of visual functioning among persons diagnosed with achromatopsia. In addition to the individual's range of acuity, much will also depend on the degree of photophobia (sensitivity to light) which can also greatly affect daytime acuity. For example, my 4-yr-old functions quite normally indoors and many people don't even realize he is visually impaired (indoors); but as soon as he is outdoors in daylight, even with dark sunglasses, it becomes quite apparent that he has greatly reduced acuity.

I believe that those people with achromatopsia who do drive are likely "incomplete achromats" meaning that there is some degree of functioning cone photoreceptor cells in the retina. Traits to look for that "might" indicate a future in driving would include: a high degree of visual functioning, minimal photophobia, ability to easily use monocular aids, and a long-term demonstration in daytime orientation and mobility such as bike riding, skating, etc, especially.

John Knox
Moderator, Achromatopsia-Group
www.achromatopsia.org



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Comments:
: My name is John Knox, moderator of recently formed Achromatopsia-Group Yahoo Group discussion forum which you can join by going to www.achromatopsia.org -- it was just formed a little over a month ago and we already have 12 members & growing. Note, while this forum is a great place for people affected by achromatopsia to fellowship and share their life experiences, it may not necessarily be the best place to obtain validated accurate information about achromatopsia. For that, I strongly encourage all members of the forum to consider obtaining the publication "Understanding and Coping with Achromatopsia" from The Achromatopsia Network (www.achromat.org). It is a GREAT publication which contains almost everything you wanted to know about achromatopsia. : : Now to answer the question (which is based on information I gathered from the publication "Understanding and Coping with Achromatopsia"), there are very few persons diagnosed with achromatopsia who have sufficient vision to become drivers. The average visual acuity of persons with achromatopsia ranges from 20/160 to 20/200; there is a wide range of visual functioning among persons diagnosed with achromatopsia. In addition to the individual's range of acuity, much will also depend on the degree of photophobia (sensitivity to light) which can also greatly affect daytime acuity. For example, my 4-yr-old functions quite normally indoors and many people don't even realize he is visually impaired (indoors); but as soon as he is outdoors in daylight, even with dark sunglasses, it becomes quite apparent that he has greatly reduced acuity. : : I believe that those people with achromatopsia who do drive are likely "incomplete achromats" meaning that there is some degree of functioning cone photoreceptor cells in the retina. Traits to look for that "might" indicate a future in driving would include: a high degree of visual functioning, minimal photophobia, ability to easily use monocular aids, and a long-term demonstration in daytime orientation and mobility such as bike riding, skating, etc, especially. : : John Knox : Moderator, Achromatopsia-Group : www.achromatopsia.org

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